Tuesday, November 17, 2015

Update - 11/17/2015



          Well life got away from me as usual. I haven't updated since we found out we were having a baby girl. Our rainbow baby was born August 12, 2015 at 8:33 a.m. via repeat c-section. She was 7 lbs 12 oz and 20 inches long. We named her Harper Lynn. This is our little beauty. 



A little back story on what happened throughout my pregnancy. At our 20 weeks anatomy scan, we found out Harper had ventriculomegaly, which is enlarged ventricles in the brain with hold cerebrospinal fluid (brain and spinal fluid). I was referred to a Maternal Fetal Medicine DR (a high risk obestetrician). After a couple of months, she was cleared and we were told she was fine and that the condition had corrected itself. We went on about the pregnancy pretty normally, except for some high blood pressure issues. At 37 weeks my BP was getting higher and I started showing signs of preeclampsia so at 38 weeks they decided to do my c-section. 
Harper was born with deformations with both ears. They were almost completely folded over. She pediatrician referred us to a Genetic's Counselor so performed genetic's blood testing and an ultrasound of her brain, kidney's, heart and pancreas. Almost everything came back clear except her brain scan. We found out when she was 1.5 months old that her ventriculomegaly did not correct itself like we were told. So far it seems to not be bothering her but it can lead to some development delays and if it ever worsens it could lead to hydrocephelus. 
She is doing great though. She is 3 months old now. She is starting to roll over and has pretty good head control. We go back to the genetics counselor in a few months to get an MRI of her brain to get a better look at it and see if everything is okay. 

This is miss Harper now :) 



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